TIF

The Thalasaemia International Federation (TIF) provides on its web site approved presentations from this year's TIF event in Antalya, Turkey (i.e. the 12th International Conference on Thalassaemia and the Haemoglobinopathies and the 14th TIF International Conference for Patients and Parents). The presentations are accessible from the TIF website and provided as PDF files and cover a wide variety of topics surrounding thalassaemia.

Deep project

The multination DEEP project has been launched, a 4-year project aiming to improve the chelation treatment of children with thalassaemia. The primary objectives of the project are to perform pharmacokinetic, efficacy and safety studies of deferiprone in paediatric patients and to provide a new formulation specifically tested for young children. Specifically, DEEP tests pharmacokinetic properties of deferiprone in children under 6 and the efficacy and safety of deferiprone compared to deferasirox therapy in paediatric patients. It further aims to provide long-term data on events potentially related to deferiprone use (alone or in combination with deferoxamine) in children, as observed in a timeframe of 3 years of clinical practice, and to provide a pharmacoeconomic evaluation of deferiprone in the concerned aged group and in comparison with other chelating treatments. The DEEP Consortium is composed of 15 recruiting European Centres (from Italy, Greece, Cyprus) and 7 recruiting non-European Centres (from Egypt, Tunisia, Albania) with scientific partners from the EU and the pharmaceutical group (ApoPharma and APOTEX) based in Canada and in Europe as an industrial partner.

The International Advisory Committee of the ITHANET Portal has recently been extended with the help and commitment of the experts of the haemoglobinopathy community. Here is the current list of committee members:

  • Erol Baysal
  • Alex Felice
  • Jan Traeger Synodinos
  • Ali Taher
  • Maria Sitarou
  • Yeshim Aydinok
  • Roberto Gambari
  • Swee Lay Thein
  • Suthat Fucharoean
  • Stefano Rivella
  • Lila Yannaki
  • Cornelis L. Hartveld
  • Petr Holub
  • John Old
  • Michael Angastiniotis
  • Marina Kleanthous
  • Jim Vadolas
  • Aurelio Maggio

In order to serve the community better, faster, and more reliably, we have renewed our web server. We are pleased to inform you that our server has now been upgraded and fully functional as before, and we apologize for any inconvenience you might have been experiencing for the last few days. If you have any questions or comments, please do not hesitate to contact us from This email address is being protected from spambots. You need JavaScript enabled to view it..

We are currently updating the interface of the ITHANET Organizations&Networks Database with improved search&filter functionality. Please do let us know of This email address is being protected from spambots. You need JavaScript enabled to view it. for designing a more user-friendly and easy-to-use interface.

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