Conditions of Use & Privacy Policy

1. Terms and Conditions of Use

By using this website (ITHANET Portal, stated below as "Portal"), you agree with the terms and conditions described below. Do not use the Portal if you do not agree to all of these terms or conditions.

2. Purpose

The information provided on this Portal is not intended for distribution to, or use by, any person or entity in any jurisdiction or country where such distribution or use would be contrary to law or regulation or which would subject us or any affiliate to any registration qualification, licensing, approval, or non-disapproval requirement within such jurisdiction or country. 

3. Sources of information and Portal Content

The information on this Portal has been compiled from both published literature and unpublished direct reports. The Portal takes no responsibility for the timeliness, accuracy, completeness or quality of the information provided. The information on the Portal is provided as an information resource only and must not to be used as a substitute for professional diagnosis and treatment. The Portal is not responsible or liable for any advice, course of treatment, diagnosis or any other information, services or products that an individual obtains through this website. The information on the Portal is subject to confirmation and not binding. The Portal reserves the right to alter, amend or remove pages, whole and in part, without prior notice or to discontinue publication for a period of time or even completely.

4. Copyright and Acknowledgement of sources

The Portal, with its content and tools, is free for academic, nonprofit, and personal use, licensed under Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.. For commercial use, please contact the ITHANET Team to obtain a license.

Please cite the ITHANET portal as follows: 

  • Kountouris P, Lederer CW, Fanis P, Feleki X, Old J, Kleanthous M. (2014). IthaGenes: An Interactive Database for Haemoglobin Variations and Epidemiology. PLoS ONE 9(7): e103020. doi: 10.1371/journal.pone.0103020
  • Lederer CW, Basak AN, Aydinok Y, Christou S, El-Beshlawy A, et al. (2009) An electronic infrastructure for research and treatment of the thalassemias and other hemoglobinopathies: the Euro-mediterranean ITHANET project. Hemoglobin 33: 163–176 doi: 10.1080/03630260903089177.

5. Data Protection and Security

Some sections of the portal, such as Newsletter and registration form, require the insertion of personal data (username and e-mail address). The disclosure of this data is voluntary. The ITHANET portal will only contact a user for activities related to the Portal itself and/or the fields of haemoglobinopathies/rare anaemias. No data will be provided to any third-party. For security reasons, the Portal uses SSL connections for the transfer of data.  

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