Welcome to IthaMaps

IthaMaps is a global epidemiology database of heamoglobinopathies, illustrating published data on a dynamic global to regional map. Country-specific information on haemoglobinopathy-related policies, prevalence, incidence and overall disease burden is given, including relative allele frequencies of specific globin mutations in each country and/or region, dynamically linked to corresponding IthaGenes entries.

IthaMaps content was supported by partnership with the HVP Global Globin 2020 Challenge


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  General information for Ghana

Continent: Africa
Capital: Accra
Population: 24339838
Area (in sq km): 239460.0

Haemoglobinopathy-specific healthcare policy information for Ghana

Healthcare policyComment/InfoReference
Prevention programme: NoPremarital testing as part of marriage counselling sessions by religious organisations.[PMID: 30171429]
SCD newborn screening: Yes (National)Only 2 pilot screening centres in Accra, Kumasi.[PMID: 27090687]
Prenatal screening: No[PMID: 30171429]
Haemoglobinopathies patient registry: NoPart of SickleInAfrica registry, under development.[PMID: 31649726]
Rare disease patient registry: NoPlanned under the Rare Disease Ghana Initiative
Dedicated treatment centres: Yes (National)From: PGPR, Global Sickle Cell Disease Network.
Blood transfusion availability: Yes (National)From: PGPR, Global Sickle Cell Disease Network.
MRI facilities: Yes (National)From: PGPR, Global Sickle Cell Disease Network.
Patient associations: Yes (National)E.g.: The Sickle Cell Foundation of Ghana (SCFG), inaugurated in 2004.[PMID: 27090687]
Genetic counselling: NoThe Genetic Education and Counselling for Sickle Cell Conditions in Chana (GENECIS-Ghana) programme was developed but not yet implemented.[PMID: 27090687]

  Prevalence and incidence of major haemoglobinopathies in Ghana

Prevalence of β-thalassaemia carriers: 1.5 % of the populationRanges between 1-11%. From: Bain, Barbara J., Haemoglobinopathy Diagnosis, 2nd edition.
Prevalence of sickle cell disease carriers: 13.3 % of the population[PMID: 26633548]
Prevalence of Hb C carriers: 10.5 % of the population[PMID: 20231425]
Incidence of sickle cell disease: 5474 affected births/yearMedian value estimated using statistical model and demographic data.[PMID: 23103089]

Mutation frequencies in Ghana

No mutation frequencies are currently available for Ghana

  Organisations in Ghana

Organisations in Ghana are currently not available


1Elion, Jacques2017-10-17Information on SCD newborn screening reviewed.

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Important Note: The relative allele frequencies presented in IthaMaps are not calculated by ITHANET, but they are extracted from the corresponding publications. ITHANET is not responsible for any mistakes in the data. Please use this information with caution! We encourage scientists that have more detailed or updated epidemiological information to contact us.

Disclaimer: The information on this website is provided as an information resource only and must not to be used as a substitute for professional diagnosis and treatment. The ITHANET Portal and IthaMaps are not responsible or liable for any advice, course of treatment, diagnosis or any other information, services or products that an individual obtains through this website.