Welcome to IthaMaps

IthaMaps is a global epidemiology database of heamoglobinopathies, illustrating published data on a dynamic global to regional map. Country-specific information on haemoglobinopathy-related policies, prevalence, incidence and overall disease burden is given, including relative allele frequencies of specific globin mutations in each country and/or region, dynamically linked to corresponding IthaGenes entries.

IthaMaps content was supported by partnership with the HVP Global Globin 2020 Challenge


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  General information for Republic of the Congo

Republic of the Congo
Continent: Africa
Capital: Brazzaville
Population: 3039126
Area (in sq km): 342000.0

Haemoglobinopathy-specific healthcare policy information for Republic of the Congo

Healthcare policyComment/InfoReference
Prevention programme: NoPilot pediatric-based carrier screening programme started in 2015. From: www.fondationpierrefabre.org
SCD newborn screening: Yes (National)Only one pilot effective screening centre in Pointe Noire.
Rare disease patient registry: Nohttp://africa-rare.org/

  Prevalence and incidence of major haemoglobinopathies in Republic of the Congo

Prevalence of β-thalassaemia carriers: 1 % of the populationLess than 1%. From: Bain, Barbara J., Haemoglobinopathy Diagnosis, 2nd edition.
Prevalence of sickle cell disease carriers: 25 % of the populationBetween 20% and 30%. From: WHO AFR/RC56/17.
Incidence of sickle cell disease: 1560 affected births/yearMedian value estimated using statistical model and demographic data.[PMID: 23103089]

Mutation frequencies in Republic of the Congo

No mutation frequencies are currently available for Republic of the Congo

  Organisations in Republic of the Congo

Organisations in Republic of the Congo are currently not available


1Elion, Jacques2017-10-17 Information on SCD newborn screening reviewed.

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Important Note: The relative allele frequencies presented in IthaMaps are not calculated by ITHANET, but they are extracted from the corresponding publications. ITHANET is not responsible for any mistakes in the data. Please use this information with caution! We encourage scientists that have more detailed or updated epidemiological information to contact us.

Disclaimer: The information on this website is provided as an information resource only and must not to be used as a substitute for professional diagnosis and treatment. The ITHANET Portal and IthaMaps are not responsible or liable for any advice, course of treatment, diagnosis or any other information, services or products that an individual obtains through this website.