Organisations

BLACKSWAN Foundation

Organisation's information


Description

The BLACKSWAN Foundation is the story of a researcher, Dr. Olivier Menzel that rose up against the lack of interest and resources dedicated to research on rare and orphan diseases. The BLACKSWAN Foundation is the tool of his action. It is a unique foundation that supports research on any type of rare disease and not only on a particular pathology. To address this challenge, Olivier Menzel is surrounded by a strong scientific committee and experts in several fields. Its goals are: To collect funds directed toward research in rare and orphan diseases. To support translational and clinical research by allocating resources to investigators working on rare and orphan diseases. To collect funds directed toward research for a specific rare and orphan diseases (e.g. liver metabolic diseases). To promote and encourage therapeutic trials aimed at developing curative drugs for rare and orphan diseases. To inform the public on rare and orphan diseases.

Organisation's Type

Scientific Organisation/Network

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